JURIST Supported by the University of Pittsburgh
PAPER CHASE NEWSBURSTDigest RSS feedFull RSS feed
Serious law. Primary sources. Global perspective.


Tuesday, July 08, 2008

Genome mapping companies discuss legal limitations with US Health Department
Mike Rosen-Molina at 1:13 PM ET

[JURIST] The US Department of Health and Human Services [official website] Monday hosted a discussion with genetic scientists, advocates and direct-to-consumer (DTC) genome mapping companies Navigenics, DeCode Genetics, and 23andMe [corporate websites] to discuss regulatory concerns. DTC genetic testing allows members of the public to obtain genetic data about themselves, usually to look for potential health risks, but does not require consultation with a health care professional. Public Health Genomics at the Centers for Disease Control and Prevention [official website] Director Muin Khoury said that the industry lacks effective regulation and worried that DTC genetic testing does not offer the insights into a person's health that customers may believe it does. Questions still surround the accuracy and usefulness of DTC testing, and some states want to impose legal limits on the industry. Last month, California warned DTC companies that they faced legal action [letter PDF; Genomeweb report] if they failed to comply with state laws requiring physician supervision of the process. New York has also issued similar warnings. Genomeweb has more.

In May, US President George W. Bush signed into law [remarks transcript] a bill aimed at preventing employers and health insurers from discriminating against people who have a genetic predisposition to disease. The Genetic Information Nondiscrimination Act of 2008 (GINA) [HR 493 materials] had passed with overwhelming majorities in both the House of Representatives and the Senate [JURIST reports]. Under the measure, employers are barred from basing hiring and firing decisions on genetic risk or predisposition to disease, while health insurers would not be permitted to deny coverage based on genetic information.






Link |  | print | subscribe | RSS feeds | latest newscast | Facebook page

For more legal news check the Paper Chase Archive...


LATEST LEGAL NEWS

 ICC summons witnesses in trial of Kenya VP Ruto
2:30 PM ET, April 18

 Kosovo prime minister calls for vote on creating court for Balkans war crimes
1:39 PM ET, April 18

 Ukraine asks ICC to investigate protester deaths
1:03 PM ET, April 18

 click for more...

Get JURIST legal news delivered daily to your e-mail!

LATEST FORUM

Unprecedented Notice of Warrantless Wiretapping in a Closed Case
DOMESTIC
Ramzi Kassem
CUNY School of Law

ABOUT

Paper Chase is JURIST's real-time legal news service, powered by a team of 30 law student reporters and editors led by law professor Bernard Hibbitts at the University of Pittsburgh School of Law. As an educational service, Paper Chase is dedicated to presenting important legal news and materials rapidly, objectively and intelligibly in an accessible, ad-free format.

CONTACT

Paper Chase welcomes comments, tips and URLs from readers. E-mail us at JURIST@jurist.org